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p37307

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I like HN because of the community and content. I hope I am a positive member of the community. I learned about HN from a post by Mark Zuckerberg.

About me I am disabled, but web enabled, You can see more about that at http://Chambers.PW or below. I designed a feeding tube coffee cup and wish to have it funded at some point and put in the market. It allows people who use feeding tubes to "eat" in social arenas without being self-conscience or making others uncomfortable. p37307@p37307.com

My Google Shopping Shortlist to: https://www.google.com/shopping/shortlists/l/a11661987450066619618 I guess if there can be gift registries for births, weddings, etc, there can be one for sickness.

My Bitcoin address is 1Pn474TokcXYstkkigm6WzdSm2gr24wRQd

I suffer from Parkinson's Plus Syndrome. I chronicle my health struggle on G+ primarily @ https://plus.google.com/u/0/106420735876542072423/about.

It's is sort of my end of life diary. Even though I don't have Multiple Sclerosis per say, I have demyelination as a secondary whammy, I stay connected with the MS community because for several years my probable DX was MS (Significant demyelination was the first concrete neuro finding) then all the other issues, autonomic dysfunction, etc, started.

About my Posts: I normally post to my circles and followers. However, please feel free to reshare to your circles if a posts pops out at you or moves you. Over at Facebook, I got a lot of spam comments and private messages on some posts. I assume that will change now that they charge $1.00 per private message.

Please note my grammar has taken a beaten with the onslaught of my PPS. Please note I may edit my posts, comments, etc from time to time to correct these issues. As a former newspaper editor, starting out as a proofreader and copyeditor, this is a silent side effect of this illness for me. Don't hesitate to private post me with a link to my post if you have suggested or corrections with my writing. Really. You can be my pseudo language therapist.

Paul Chambers has a rare form of Parkinson's called Parkinson's Plus Syndrome. As a result, certain autonomic functions are limited. Included in these are blood pressure and pulse, autonomic swallowing functions, requiring him to be permanently feed via a feeding tube for all food and most liquids, mobility and gait issue. Spasticity is a major problem too and heat sensitivity. I have a Baclofen Pump to better regulate his muscles. www.baclofenpump.com. In April, Paul had a Medtronic cardiac device implanted to better control, manage and examine is cardiac functions.

Bragging rights Disability Advocate, Feeding Tube survivor, heck of a nice guy.

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"Default to full screen". I hate it too. Enough of the boxes and frames. Maybe I am old school but I like pages to flow. Google is getting terrible with their UI's. From a disability access point of view, it is hard to navigate around the new Google "plussed" world. Crappy UI's and user experience combined with their recent views on GMAIL users should not expect privacy, Google is on the outs with me. Everyone is taking off with HTML5 but very few sites, not including Google, is getting it right.

I posted this just moments before sharing this link over at G+ at 3:03 am. News coming and going I am writing this because every device in the house just went off with breaking news alerts. It's 3am. Looks like another item for the obsessed will soon be over. First, the Zimmerman Trial is over, next the infant Prince will be born. Soon that Glee stars passing will be a one time news story. In the near future Snowden may or may not be freed from that Airport in Russia. What will the media pick to be the next national/international discussion? What options can we take to shut our devices down at a certain time to prevent mass alarms for so called breaking news.

Exactly, at 3am this morning every device in the house went off giving the announcement. My only fault with posting this was I got distracted before I started the conversation by with editing this post: https://plus.google.com/u/0/106420735876542072423/posts/DZ9G... News coming and going I am writing this because every device in the house just went off with breaking news alerts. It's 3am. Looks like another item for the obsessed will soon be over. First, the Zimmerman Trial is over, next the infant Prince will be born. Soon that Glee stars passing will be a one time news story. In the near future Snowden may or may not be freed from that Airport in Russia. What will the media pick to be the next national/international discussion? What options can we take to shut our devices down at a certain time to prevent mass alarms for so called breaking news.

[dead] 13 years ago

Riddle. How do you get a GOP politician indicted and facing 102 years in Prison in Ohio in one of Ohio's most conservative Counties? Answer: Run an investment scam with GOP investors money.

Rep Beck is a high-ranking member of the Ohio House and has served as 54th District representative since 2009.

He is the chair of the Ways and Means committee, and he's also on the Finance and Appropriations committee.

The full list of felony charges against Beck are:

Two counts of misrepresentations in the sale of a security. Two counts of unlicensed sale of securities. Two counts of fraud in the sale of securities. Two counts of sale of unregistered securities. Two counts of selling securities in an insolvent company without full disclosure. Two counts of making a false statement about the financial condition of an issuer. Four counts of theft by deception.

I think it is time to rethink everything, Not just Microsoft. Cloud computing is at risk now too. From Amazon to Google Drive, Gmail, etc. Shared hosting is not even secure any longer. Our connections from our isp can be the source of their spying.

People want the ease of computing not secure computing. The polls show it. In the US everyone but the geeks are OK with the NSA. Sad.

The system is going to have to change to federated data. Email, Social media, everything. Appliances owned by the individual. Either located in the home or small server appliances "rented" at a colocation facility and every user's info on their appliance. Any warrants are served to the individual not the "processing" or interpreting host that parses the data in their UI or service. The host, whether Facebook, Google, Yahoo, Microsoft, etc would notify the requester that that info is on a server rented solely by the user and they have no standing to grant or honor the warrant as they are the wrong party.

Please note I use voice typing due to fine motor control and this comment may contain errors.

Lots of comments here. Not sure if it is already covered or not. So I will be brief.

DDG, hushmail, etc. Doesn't really matter does it if the NSA gets you at your internet connection and reads what you are doing from your service providers trunk?

You can DuckDuck and Go and hush your email. If they are grabbing it at the point of your modem and your internet provider, the illusion is you are secure but really you are not.

Here is the content of the post and afterwards, the content of the G+ +1 auto share and my brief editorial:

Thank you Google Plus for including this in my stream without my consent. At least it wasn't a nude like it was yesterday. This is not something I wouldn't have pop up in my stream in the middle of the afternoon with visitors in the house. I also find it degrading. And no, this isn't a forced post by my wife. Although if you keep putting sexually explicit posts in my stream, it could cause problems.

Auto Shared: Large Blue Meme stating: Women wake up yawning and men wake up with erections. Coincidence?

Editorial: I get to choose where I put the people I follow. Sometimes I follow someone because they may develop or have an interest in Linux. Maybe the Banjo. Could be health or news.

Grant it, not everyone will post on one subject. I don't. If someone comes up with content I might not share their view, maybe Adult related, politics, Gaming, etc, I can choose to put them in a circle or list (if on Facebook) that doesn't show up on my desktop or workstation. I have to manually go to that circle or list to view the content.

Google's new random "your Friend +1 this" puts the entire post on the home screen. This can cause many problems if certain materials pop up at the wrong "real life" social time. Dinner with the family and kids, mother in law, in the case of the large busted women from Thursday.

Not allowing the Home screen to filter these out is just wrong and an Epic fail for G+ at this time.

I have seen all of my doctors office swallowed up by hospitals in the last year. In Southwestern Ohio Mercy Health Systems and TriHealth are buying them up. They are following the lead of Christ Hospital who started this years ago at an alarming rate.

As far as my rates go, I did notice almost everything, even items done at the local office, was an outpatient procedure billed by the mother hospital, at least in part. Also something I have noticed in the increase in lab work.

I am a chronic patient, I have a heart implant, feeding tube and an infusion pump that puts baclofen directly in the spinal area.

With co-pays going out of this world under this new system, we have elected to do many things at home that used to be done at the office. Changing out my feeding tube used to cost a few hundred dollars and jumped to over $6000 last fall. My wife now changes it at home. I have my Baclofen pump refilled at home instead of the office by a third party. I elected to send my heart readings over the phone instead of going into the office, except twice a year. Finally, when I make all my appointments within days of each other when possible and make them share lab results. They don't like this but I can't afford all the extra charges out of pocket. Even the monthly b-12 shot had a significant rate increase. Once again, I choose a cheaper route. The local non-affiliated walk-in clinic for the b-12 shot.

It is nice to see this article. It explains alot. At 41 with a form of Parkinson's Plus, the nickle and diming has to stop. I don't know where the $$$ is going to come from.